Most recent listed first.
Hospital for Special Surgery, New York, NY: Project entitled: “The effect of using e-Aminocaproic acid (EACA) to reduce bleeding during hip surgery”. VRO surgery (i.e., varus rotational osteotomy) is conducted on many CP patients to maintain a level pelvis, a balanced spine, and mobile pain free hips. The purpose of this study is to determine whether the medication, EACA, can be effective in decreasing blood loss and the transfusion requirements after the surgery. The factors of blood loss and transfusion requirements can impact the length of hospital stay and can result in other complications. Such surgery is extremely common in patients with CP, and reducing these complications could be a significant benefit to people with CP.
McMaster Children’s Hospital, Ontario, Canada: Project entitled: “Development of Multimedia Education Modules for Families of Children with CP”. The World Health Organization has created a universal framework for health (i.e., the International Classification of Functioning, Disability and Health or ICF). Using the ICF framework, this project aims to develop informational resources that meet the needs of parents and families of children with CP to help them to better understand the health condition and the treatment of their child.
McGill University Health Center, Quebec, Canada: Project entitled “Community Partners for Children’s Participation”. The objective of this multi-site research is to identify the relationship between social deprivation, resources offered, and participation levels of children with CP. Then, based on these factors, interventions will be developed to promote participation. Currently, little is known about “real life” contexts and the possible impact on the community-based interventions in promoting participation.
American Academy for Cerebral Palsy and Developmental Medicine (AACPDM): AACPDM Research Institution: Research compares outcomes for patients with CP based on when and if they receive surgery for hip dislocation. Such surgery is very common for people with CP, and the timing of treatment is problematic because of the developmental issues.
Case Western in Cleveland, Ohio: Research tests cryoablation to permanently resolve the drooling that so many people from CP suffer from. Current temporary treatments produce dry-mouth side effects which can lead to dental problems and discomfort. New treatments desperately are needed.
AACPDM team of research doctors across the country: Pilot study involving a portable device to evaluate reflex and non-reflex changes in patients with CP.
NYU Langone Medical Center: Research studies osteoporosis in children with CP, and includes gene analysis.
Cincinnati’s Children’s Hospital: Research studies the effects of electrical stimulation on one of the most common gait problems in children with CP (foot drop).
Spaulding Rehabilitation Hospital: Harvard Medical School’s “Effects of Transcranial Direct Cortical Stimulation (tDCS) in Cortical Plasticity and Motor Learning in Children with Cerebral Palsy” studies the effects of non-invasive electrical brain stimulation with the goal to improve movement and learning capabilities.
AACPDM’s “Large Amplitude Training for Children with Cerebral Palsy: A Planning and Feasibility Study” investigates an approach that was previously successful in patients with Parkinson’s disease.
American Academy for Cerebral Palsy and Developmental Medicine (AACPDM): Project involves robotically-assisted (repetitive) physical therapy intending to improve mobility of arms and hands in children with CP.
Nationwide Children’s Hospital (NCH) in Columbus, Ohio: The project “Learn from Every Patient” involves 1000 children with CP to find the best treatments and apply new standards.
Children’s Hospital Pittsburgh: Dr. Tyler-Kybera
University of Wisconsin: A pilot study headed by Dr. Ruth Benedict entitled “Outcomes of Interventions for Spasticity Management among Children and Young Adults with Cerebral Palsy and their Caregivers.” This study uses strength training with patients with CP and measures the impact on their gait and self-esteem.
University of South Carolina: Research headed by Dr. Noelle Moreau entitled “In Vivo Assessment of Quadriceps Muscle Plasticity in Children with Cerebral Palsy.”
Children’s Hospital, Pittsburgh and University of Wisconsin: Several research projects headed by Dr. Leland Albright, a pioneer in the use of the Baclofen Pump (ITB Therapy, or intrathecal baclofen therapy) which is a precise, targeted therapy used to reduce severe spasticity caused by cerebral palsy.