You are Making a Difference by Funding Promising Research
Over the years, donors, riders, walkers, volunteers, and sponsors of Pedal-with-Pete have funded promising clinical research through our grants to research centers across the country and around the world, including Nationwide Children’s Hospital in Columbus, Ohio and the Case Western University in cooperation with the Cleveland Clinic.
Grants are awarded annually with advice from the American Academy of Cerebral Palsy and Developmental Medicine (AACPDM).
Most of these grants are seed grants, and such funding is scarce yet critical to the research process.
With dollars raised in 2017 we were able to make grants for these two worthy research projects:
Development and Validation of Epigenetic Signatures for Dyskenetic and Ataxic CP by Evaluation of DNA Collected from Peripheral Blood Samples and Determination of DNA Methylation Pattern Differences Among Genes Associated with CP Diagnosis
Robert Akins, PhD & co-investigators: Nemours-Alfred I. duPont Hospital for Children, Willmington, Delaware
This study will look for biomarkers in the DNA of people with dyskenetic and ataxic CP with a goal to help in CP diagnosis. A previous study by the group found a DNA biomarker in people with spastic CP. This is important because early diagnosis of CP remains difficult; earlier diagnosis allows earlier interventions. Additionally, an understanding of the differing DNA markers for CP can indicate the best treatment plans for the patient, saving critical time for interventions.
Multimorbidity Risk Assessment and Prevention through Health –promoting Behaviors in Adolescents and Adults with Cerebral Palsy
Jan William Gorter and co-investigators: McMasters University, Ontario Canada, University of Michigan College of Medicine, & Erasmus Rehabilitation Medical Center, Rotterdam, the Netherlands
This study seeks to rigorously study the impacts of physical activity, sleep, and diet in preventing stroke and heart disease in patients with cerebral palsy. While such impacts are documented in the population that does not have disabilities, the population who has CP and other physical disabilities is not widely studied w.r.t. the impact of preventative behaviors. Typically, people with CP are not coached with the same energy toward healthy behaviors. The researchers’ aims are to show that such health-promoting behaviors can have similar impacts with people who have CP.
All this research you fund helps kick off ground-breaking work that can lead to treatments and quality-of-life changes that allow children and adults with CP to better reach their full potential. Thank you so much for your support!